Terkel Andersen « Rare Disease Blogs.

Terkel Andersen

President, Rare Disease Europe (EURORDIS)

Terkel Andersen was born in 1957 in Copenhagen, Denmark. A person with haemophilia himself, he has been president of the Danish Haemophilia Society since 1985.Terkel has broad experience in disability and health issues. He was one of the founders of the Danish Alliance of Rare Disorders in 1986 and worked as the first Executive Director of the Centre for Rare Diseases and Disabilities of the Ministry of Social Affairs in Denmark from 1990 to 2001.Terkel Andersen has been member of the Eurordis Board of Directors since the start of the organisation in 1997 and president since 2003. Professionally Terkel Andersen is working as head of office of a standing committee on volunteer effort under the ministry of social affairs in Denmark.

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Rare Disorders Denmark

July 30th, 2010 - 1 comment

Challenging times in 2010 for Rare Disease patients in Europe

Times of austerity always affect those who are already most in need and vulnerable. For this reason 2010 may become a year with serious setbacks for Rare Disease patients. Already a number of disappointing news confirm this apprehension: Recently we learned that the compromise on the directive on cross boarder health care will not bring [...]