Karen Aiach
Patient Representative on the Paediatric Committee (PDCO) of the European Medicines Agency (EMEA)
Shortly after the diagnosis of her daughter with Mucopolysaccharidosis type III, otherwise known as Sanfilippo Syndrome, Karen founded the Alliance Sanfilippo. This organisation funds research and preclinical development and also brings together people who have a common interest in finding solutions to cure patients. Karen plays a leading role in its activities as the organisation's chairperson. She has also participated in the Drug Information Association's (DIA) EuroMeeting and in 2007 was nominated as a Patient Representative representing EURORDIS at the Paediatric Committee of the EMEA.
