Rare Disease Blogs

Dorica Dan has a daughter Oana with Prader Willi Syndrome. She represents patients with rare diseases, their families and professionals from Romania. Being a patient with poliomyelitis, she has always spent time among people with special needs and understands their needs, hopes and dreams. She is a board member of EURORDIS and IPWSO - International Prader Willi Syndrome Organization since 2007, and currently she is also an advisor to EUROPLAN, an EU Commission-funded initiative to establish national plans for Rare Diseases throughout the EU's Member States. Dorica is the Chair of Romanian Prader Willi Association, Romania (RPWA); President of the Romanian National Alliance for Rare Diseases(RONARD) and Coordinator of the Center for Information about Rare Genetic Diseases.