Avril Daly
Board Member, Rare Disease Europe (EURORDIS)
Avril has worked for the Irish charity Fighting Blindness since June 2000. As Head of Public Affairs, she is responsible for raising awareness of retinal degenerative diseases among the general public, health care professionals and policy makers. She also works on the promotion and development of the charity’s significant research portfolio. Avril is also an active member of GRDO – The Genetic and Rare Disorders Organisation, which is the Irish national alliance supporting families affected by genetic and rare disorders. She was elected chair in 2008 and is also a member of both The Medical Research Charities Group (MRCG) and The Irish Platform for Patient Organisations Science and Industry (IPPOSI) who are working closely with GRDO to campaign for the establishment of a National Plan for Rare Diseases in Ireland. Avril was diagnosed with Retinitis Pigmentosa in 1998 and is registered as Vision Impaired.
