May 6th, 2011 -
Date: 11–14 May 2011
Venue: Antalya, Turkey
TIF’s largest and longest-established international event for medical professionals, scientists, patients and parents is the biennial International Conferences on Thalassaemia & Haemoglobinopathies, organised jointly with the TIF International Thalassaemia Patients/Parents’ Conference, which attracts hundreds of delegates from all corners of the world. TIF has had impressive results over the [...]
February 21st, 2011 -
The Cyprus Alliance for Rare Disorders (C.A.R.D.) is a non-governmental, non-profit organisation t founded in Nicosia, Cyprus in June 2010. Its founding members include the Cyprus Muscular Dystrophy Association, Cyprus Adult Congenital Heart Defects Association- Cyprus, Cyprus Association for the Protection of Spastic and Handicapped Children, Parents Association of Spastic and Handicapped Children, Cyprus Primary [...]
January 31st, 2011 -
Haemoglobin (Hb) disorders, including thalassaemia and sickle cell anaemia, are a group of genetic blood disorders classified as rare diseases as they affect less than 1 in 2000 inhabitants of the population. Approximately 7% of the global population carry an abnormal haemoglobin gene, and more than half a million affected children are born each year. [...]