About Us
RareDiseaseBlogs.Net is a joint EURORDIS/NORD project whose aim it is to bring together key international opinion leaders in the fields of rare diseases & orphan drugs in order to promote debate and foster interaction with members of the public.
Bloggers are drawn from a broad range of stakeholders and interests the rare disease community including patient advocates, rare disease national and international patient federations, regulators, public policy decision makers, national health authorities and research.
The blog is organised into two high level categories, each with its own series of sub-categories. They are:
